Through the creation of a patient safety program, the King’s hope to help prevent this from ever happening to another child. The Josie King Pediatric Patient Safety Program at the Johns Hopkins Children’s Center will identify safety concerns, revise medical education to sharpen focus on proactive safety measures, and empower families to assume equal partnership in their child’s care.
The Parents of Infants and Children with Kernicterus is organized exclusively for charitable, scientific and educational purposes, more specifically to:
- prevent kernicterus through a universal system wide program of education, objective screening, follow up, diagnosis and treatment
- provide information and support to families
- identify effective therapies and treatment that could improve the quality of life for children and adults with kernicterus
- implement a structure of accountability for reported cases of hyperbilirubinemia